:.Puzz1ed P1ace.:

Abandoned?

22nd March 2011

Abandoned?

Oh dear oh dear, how sad and forgotten does my blog look?!  Methinks it could be time to start blogging again and share my wisdom with the world.  Well, some thoughts and opinions at least.  Will update the software on here this week and hopefully start posting again in earnest real soon.  Lots has happened and much has changed – not all for the better – but more on all that real soon…..

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22nd June 2009

Oops, where have I been?!

Just been reminded (again) that the site lacks updates.  Where has the time gone?!  I can’t believe it’s been neglected for so long…. oh what irony!

Anyway, here’s a quick update on what is going on in my little world now…

  • Samuel’s now 3 (going on 13) and as adorable as ever!  He is so good and loves to help out in his own special ways around the house…. like putting the washing machine back on as soon as it finishes, and pressing ‘his latter’ oin Heather’s laptop when she leaves it unattended in the middle of writing school reports!  He’s desperate to be just like Daddy and most days insists that we wear the same colour clothes now!
  • I’m still working with DPN – and still not paid! – despite the promotion to National Operations Manager and then also Vice-Chair.  We’ve employed several staff over the past year so I’ve taken on an HR role alongside everything else.  Next step is to appoint a Development Director who will then take over a lot of what I have been doing (essentially a ‘CEO’)
  • The local Fibro Support Group has developed well, and will soon be finding its own feet while I concentrate on my role as Regional Co-ordinator for Essex and London.
  • I’ve somehow landed up as Secretary to Thurrock Disability Network and have the pleasure of keeping everyone in line and stirring up trouble.  Hey, it’s a tough job but somehow I manage!
  • My own health continues to fluctuate but I’m doing far more now than I  would ever have considered a year ago.  On top of all the above I continue to provide an ICT Consultancy to a number of charities and arrange hosting and other services here and there.

That’ll do for now – I’ll try to add some more later!

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1st February 2008

another quick update

Sorry! Anyway, here’s a brief update…

As I mentioned before I’m now doing a fair bit of work with Disabled Parents Network.  I’m taking calls a few hours each week and have also taken over responsibility for the website, forums, etc etc and all the technical problems that come with it.  Have been revamping the forums over the past week as they looked a little tired (and so have I).

The Fibromyalgia Support Group is slowly getting going, and will be great once it’s fully functional – so far there are a number of posters about and a few calls and enquiries trickling in… press release due to go out at end of minth once we’re back from holiday.

Samuel’s growing fast and doing new things all the time. Can’t believe he’s almost 2 – got his birthday party tomorrow, having followed all his instructions as to who to invite and what food to get! Under the thumb? me?  Hmmm,.,..

Laptop problems are solved, have a whizzy new computer, which of course meant buying a new desk too. It makes such a difference to be able to get things done properly again.  I’ve also got some great new bits of software up and running now which I’ll rave about more another day. One of the most helpful though is the one that allows me (with user permission) to see other people’s PCs and take control of them in order to fix problems.  Spent a couple of hours working on a machione in Salisbury yesterday – it’s now virus free, cleaned up and working much better than before, and the email problems were all fixed too.   Hoping my mother-in-law’s not reading this, though, cos I may have to change phone number and email address if she knows!!

Looking forward to a week away for Samuel’s birthday next week and then a weekend in Reading with DPN in March.  Depending on the outcome of my DLA tribunal on Monday there may be more time away soon once some bills are paid!

Gonna try to post again in the next few days – nag me if I don’t!

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7th December 2007

Quick update for those that are nagging :p

Several people are asking for updates… sorry… here’s  a brief summary of life with more to come later hopefully

I’ve been rather busy over the past month which is partly why there’s been no new posts.  My laptop is also on its way out :-(

I’ve been doing a few mystery shopping and field marketing jobs over the past few weeks, some better than others, and one almost resulting in a discrimination case being brought about.  Of course, because of the nature of the work I can’t say too much about it, but some of it has left me very tired and I am having to cut back on what I do.

I’m now working with Disabled Parents’ Network in several capacities, all of which are voluntary.  There are several other roles that they’ve asked me to think about too/instead, but they’re on hold for the time being!  I am, however, part of the Support Services Team – taking phone calls every Friday afternoon and also responding officially to some of the messages posted on the DPN website forum.  I’ve also taken on the new role of local network link for Thurrock, promoting DPN within the area and looking into how local service providers cater for disabled parents.

I’m still considering a local Fibromyalgia Support Group, and discussion continue with FMAUK about this.  I can’t do it all on my own, though, so if anyone else locally feels this is important then I *need* to hear from you!!

Samuel’s growing up at an amazing pace and is ridiculously excited about Christmas.  He insisted on wearing a Santa hat to nursery today,… it’s way too big for him, but he doesn’t care!

Gonna have to leave it there for now and get ready to answer the phones

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25th October 2007

Positively discriminatory

When you hear the phrase ‘disability discrimination’ what do you think? Butlins have managed to challenge my – and probably your – interpretation…
It used to be that disabled guests, and in particular wheelchair users, were let into entertainment venues before everyone else. The main reason for this came down to health and safety: they had to get us in and settled before everyone rushed in without a care for anyone else. Last time we were here they had to keep everyone else out for 40 minutes while getting all the wheelchair users in the broken lift! 
Things are a little different now. There are still 2 queues to get in, but they no longer let the disabled guests queue in first which kinda defeats the object. With the lift the way it is, people who joined the queue half an hour after us are up the stairs and seated before i’m even in the lift! The reasons for the policy change vary depending on who we talk to. Some say it’s because of equal opportunities, others pay it’s because they can’t discriminate. I’m not sure i agree with either but it’s hard to argue when they say that. I’d be interested to hear other’s views…

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21st October 2007

Postcard from butlins

Hey ho, we’re finally settled having had to move three times since we got here! Our disabled-friendly, easy-accessible accommodation was on the first floor. Since they couldn’t provide someone to carry me up and down the stairs in my chair whenever needed they offered to move us to a lovely unit on the far side of the resort, too far out for up to be able to get about! There was talk of a free motorised chair until they realised we were here for the week, so we were moved again! We’re now unpacked, but have lost a room in the process so samuel’s sleeping on the floor: thankfully we’d brought his blow up bed just in case! There’s still no dropped curb to get to the nursery and under 5s play room, our shower leaks, it’s cold, and I forgot to feed the fish before we left! Wish you were here? .

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21st October 2007

Wish you were here?

I’m having a lovely time on my holiday. Daddy said he will try to tell everyone about it on his Blog later today. Hope you are well. Lots of love, samuel x

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2nd September 2007

Summer is Over :(

Well, OK, technically I think it is still Summer, but the School holidays are over at least. Where’s it gone? Seems only a few days ago that Heather came home with loads of presents from the kids and other piles of crap. And now it’s all over, she’s back to work, I’m back to stressing that I can’t cope with doing everything, Samuel’s confused and can’t understand where Mummy’s gone again – even though he waves and shouts goodbye for the entirety of (at least) the last half mile to school.

I had plans to update the blog – both by posting and tidying it up generally – through the Summer, but (as you probably know) that’s not happened. I blame most of it on BT/TalkTalk/Orange/Sky… see the long rant posted a few weeks ago to check the details on that one. The good news now, though, is that we have a working landline phone once more (with a new number – email if you not got it – though still no idea who we should be paying for calls ‘cos BT ain’t charging us for them and don’t know who they are being routed by!), a working broadband connection (not the 16MB advertised, but usually somewhere between 9 and 11MB on a good day… and 3-6 the rest of the time!), a new VOIP phone line for any work-related calls etc, and a rewired network.

Have acquired other new things in the Summer too. We’ve got most of Samuel’s Christmas presents already thanks to Boots clearance sale and a couple of boot sales (must do one ourselves to clear space for the new stuff). I’ve managed to get a new bank account with Co-op to stop Nationwide nicking my benefits, though am still pursuing that with them – they’ve so misread the Social Security Administration Act and are talking utter rubbish… just got to make them see that or get a judge to help them! We’re the proud owners of a 4-man tent and have had our first family camping holiday – almost disaster-free but will be sharing more about that in ‘Diary of a Disabled Dad‘. Oh, and a nice new dent in the car, together with a touch of whiplash. Grrrrr…

Other than the hit-and-run crash, though, the Summer’s been great despite the speed at which it has gone. It was great to spend a few days with my Aunt in Devizes, and to see my Dad and Stepmum while we were camping. Samuel got to see them all too, but I think his highlight was seeing Noddy, Fifi, Rupert, Little Princess, Bob, etc all at once at Butlins. Don’t get me started on Butlins right now though – got to write a strong letter to them, and probably then to the DRC and HSE too. Worst disabled access and safety I’ve ever come across.

The next few weeks are likely to be relatively busy still. I’ve got a string of Mystery Shop assignments at the moment (will post more about that separately), have to get the car sorted, and now that the new Phoenix catalogues are available, with the wonderful Christmas range of cards, wrap, etc it’s time for a mailing, phone calls, and trying to book a few parties. I’ve got another hospital appointment this week, too, which I’m really not looking forward to. If I’m lucky they won’t do anything other than chat and ask a few questions (rarely do very much about anything else IME) though there is a possibility that they may stick a long tube somewhere I’d rather they didn’t.

On that note, I’ll sign off for now and go take some more tablets – they’ve been changed now too, and I’ve hardly slept all Summer :-( I’m planning on getting a few more entries written now, which will appear over the next few days so feel free to drop by often and check, or sign up to get updates. That reminds me – must look into that side of things properly too. If you want to receive notification of new posts and can’t work out how, drop me an email and I’ll hopefully have worked it out by then myself.

Have fun and stay happy, and remember…

blowing out the other person’s candle won’t make yours shine any brighter

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28th August 2007

photos

Holiday photos uploading as I type.
see http://picasaweb.google.com/steve.westrop
more news soon…..
Steve

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4th August 2007

Back Online at last

woohoo!  I’m back online after almost 2 months of battles with telcos.  Since several people have now asked for the intricate details of our latest battles I’ll share…

Had a nice letter from TalkTalk a while ago reminding me that the phone bill needed paying, so called and agreed to pay the following week.  That was all OK, they were quite happy with that… or so they said…. yet took it upon themselves to cut our line off completely that afternoon and refused to do anything about it.  Apparently only BT could sort it (not technically true but cost-saving cop-out on their part it transpires).  So called BT who agreed to reconnect our line with themselves the following day with the same phone number.  At 8am they said.  8am came and went, so called to chase up and get advised it may take until 4pm.  Called again at 6pm and they agreed to look into it.  Several calls and several days later they decided it hadn’t been connected since I’d not paid a deposit.  Pointed out that they’d not asked for one, and at one point had even told me that they didn’t require one, but apparently it was all my fault still.  Was given another number to ring in order to pay the deposit and told the line would then be connected next day.

Called, paid, and told to wait 3 days.  Argued. Waited.

Called, chased, told computers not working but they would call me back once they were. Waited.

Waited.

Called to see how much longer computers take to fix.  Had been working again for a while.  Hmmm…..

And so it went on.  Then transpired TalkTalk had not closed the account properly so BT could not connect, then the order had not been completed properly so BT could not connect.  A new order was made. Then they couldn’t connect cos I’d not paid the deposit. But I did pay the deposit and they changed the order and,… no, silly me, all my fault still. BT done nothing wrong.  Incidentally, did you realise how expensive it is to call a company that only gives you freefone contact numbers when you can only use a mobile phone?  Or that BT has a new ordering system that only a handful of its staff can use, resulting in queue times of not less than an hour. Ever.  Eventually offered a £20 credit to cover the inconvenience of having to call them at my expense daily to find out what excuse they have next.

Oh, and another thing, it is not possible to have your call placed straight to the top of the call queue, no matter what other lies customer service reps may tell you.

Five weeks later the line was connected, but with a different number.   Another hour and a half on hold to get to the right team and another £20 credit offered to cover cost of telling people BT are incompetent and changed our number after equaly-incompent TalkTalk disconnected us.

Just the broadband to get fixed now then, cos OrangeHome won’t recognise the phone number and so still can’t get online.  A quick call and it’s all sorted and will be working again in 7 days.  Great!

7 days later and still no broadband.  Strangely the phone number that was provided with the broadband package has also stopped working.  Call OrangeHome….

OrangeHome had called our non-working phone line and emailed our inaccesible mailbox to let us know the direct debit had failed (therein lies another tale about how Sky applied for a Direct Debit in error, which bounced, got a charge put on the account which Nationwide agreed to waive but then didn’t, causing other DDs to bounce and more charges, all of which are claimed illegally from my account under the Social Security Administration Act, in which the ‘inalienability’ clauses make it illegal to deduct any form of charge from benefits.  Nationwide claim they do not have to obey this law cos it says in their member rules that they can take money.  Suggested I setup a society that will sell alcohol to children and steal cars, since it would be legal provided our rules said so… they run off a tad confused and worried and not replied as yet).   Since they had not been paid they had cancelled the account and wanted £50 for the remainder of the year and would then setup a new account and still take more money every month.

Needless to say I declined their kind offer and am waiting for them to now collect their equipment, storage of which is now being charged at £10 a week until such time as they arrange a mutually convenient time to collect said item.

I still can’t believe I did what I did next.  I phoned Sky.  Yes Sky.  Despite having ballsed up my DDs and caused so much trouble already, and despite charging a £4 “invoice admin charge” on my account every time they send me a “statement” – thus another unenforcable charge and purely as a result of their own incompetence – I called and ordered Sky broadband.

For the first time ever Sky have done a great job and I’m now online once more – though they told me we could get 16MB broadband when the line can only support 6.3MB max, so waiting for them to fix that bit and refund us the difference between the two packages… and the £4 invoice charge for the invoices they don’t send, and the DD failure charges that the bank applied when they tried to take money they shouldn’t have….

Wow, you still here? Thought you’d have got bored and gone elsewhere by now lol  I feel better for getting that off my chest though.

It does mean that phone numbers have changed – email me for the new ones.

I need a lie down after all that, and then will try to let you know about life generally.  And Billy.  Can’t forget Billy. That’s more than my life’s worth right now….

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