:.Puzz1ed P1ace.:

Not too sure how it’s come about now, but I’m becoming increasingly involved in a new fibromyalgia support site at http://fibromyalgiasupport.co.uk/forum – it’s great to be able to help and encourage others without having to leave to comfort of the settee or bed!

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Amazing how much can happen in 24 hours.

I’ve been to the Pain Management Clinic, had it confirmed again that I have FMS, and referred onto a seven week multi-disciplinary course of Cognitive and Behaviour Therapy. Of course, the NHS being what it is I don’t expect to start this until the Summer!

A local school has asked me to help them in setting up a couple of new programmes. The loft’s full of resources, so it’s great that some of them will be put to good use for a while. I don’t know that I’ll be doing much more than that though – don’t think my body’s up to it.

Have also been commissioned to write an article for a national parenting magazine, to start their new section for Dad’s. How cool is that?! They want a photo too… feel free to flick through the album and suggest which one to submit! Needs to be of me and SJ.

Really should go do the ironing or something equally useful but still sore from being prodded and poked, so gonna lie here and play games instead. Or start writing. Nah, games it is…

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Just came across this on a FMS support site.  Hadn't realised before quite how much was wrong with me
 
So here it is – the 50 signs of FMS…

1. pain
2. fatigue
3. sleep disorder
4. morning stiffness
5. cognitive or memory impairment
6. irritable bowel
7. chronic headaches
8. TMJ syndrome
9. numbness and tingling sensation
10. muscle twitching
11. skin sensitivities
12. dry eyes and mouth
13. dizziness
14. allergic symptoms 
15. mitral valve prolapse
16. heel or arch pain
17. brain fatigue
18. painful periods
19. chest pains, noncardiac
20. depression
21. panic attacks
22. irritable bladder
23. multiple chemical sensitivities
24. joint hypermobility
25. suicidal
26. personality changes
27. lightheadedness
28. disequilibrium
29. severe muscle weakness
30. intolerance of bright lights
31. alteration of taste, smell, hearing
32. low frequency, sensorineural hearing loss
33. decreased painful sound threshold
34. ringing in the ears
35. exaggerated involuntary rapid eye movement
36. changes in visual acuity
37. intolerance of alcohol
38. enhancement of medication side effects
39. intolerance of previously tolerated medications
40. severe nasal and other allergies possible sinus infections
41. weight change (gain)
42. muscle and joint aches
43. night sweats
44. heart palpitations
45. muscle spasms
46. Raynaud's-like symptoms
47. carpal tunnel syndrome
48. heartburn
49. difficulty swallowing
50. interstitial cystitis 

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Saw the Rheumatologist yesterday, and he has diagnosed Fibromyalgia – which is what we had expected.  Doesn't necessarily rule out ME/CFS, as they are so closely linked, but it's good to know that it's not 'all in my head' as some have suggested.

Several people have asked what it is – so have posted more info on Fibromyalgia here. 

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Grrr, Dr's!

Still no closer to getting anything sorted.  Was dicharged from the vestibular clinic on Wednesday and told there was nothing wrong with my ears or my hearing, though everyone disagrees with the latter.  Had the worst attacks of dizziness ever over the weekend, and spent far too much time lying on the floor as a result, unaware of exactly how I got there.

Just been to the GP again this morning for my monthly visit.  Got a new certificate for the DWP to lose in their filing system along with the others, and was put straight back onto the tablets that the vestibular consultant told me to stop taking, cos the problem is all with my ears apparently.  Make sense of that!

Worst part of the visit, though, was the look on the Dr's face once he took my blood pressure.  He took it again cos he didn't believe it could be whatever it said it was.  So now have to get that checked every 2 weeks for the next couple of months cos they may need to treat me for that also.

Still waiting to see the Rheumatologist for the Fibromyalgia test, which may bring us closer to knowing if it is ME/CFS or not.  Got another Dr coming to assess me on behalf of the DWP tomorrow to see if I qualify as disabled or not.  He may leave here less able to walk than me if he says not!

Of course, still heard nothing else from any of the other ppl that we're waiting to hear from in order for me to start to rebuild at least a small part of my life.  Gonna go crawl back under my rock….

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