:.Puzz1ed P1ace.:

Abandoned?

22nd March 2011

Abandoned?

Oh dear oh dear, how sad and forgotten does my blog look?!  Methinks it could be time to start blogging again and share my wisdom with the world.  Well, some thoughts and opinions at least.  Will update the software on here this week and hopefully start posting again in earnest real soon.  Lots has happened and much has changed – not all for the better – but more on all that real soon…..

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22nd June 2009

Oops, where have I been?!

Just been reminded (again) that the site lacks updates.  Where has the time gone?!  I can’t believe it’s been neglected for so long…. oh what irony!

Anyway, here’s a quick update on what is going on in my little world now…

  • Samuel’s now 3 (going on 13) and as adorable as ever!  He is so good and loves to help out in his own special ways around the house…. like putting the washing machine back on as soon as it finishes, and pressing ‘his latter’ oin Heather’s laptop when she leaves it unattended in the middle of writing school reports!  He’s desperate to be just like Daddy and most days insists that we wear the same colour clothes now!
  • I’m still working with DPN – and still not paid! – despite the promotion to National Operations Manager and then also Vice-Chair.  We’ve employed several staff over the past year so I’ve taken on an HR role alongside everything else.  Next step is to appoint a Development Director who will then take over a lot of what I have been doing (essentially a ‘CEO’)
  • The local Fibro Support Group has developed well, and will soon be finding its own feet while I concentrate on my role as Regional Co-ordinator for Essex and London.
  • I’ve somehow landed up as Secretary to Thurrock Disability Network and have the pleasure of keeping everyone in line and stirring up trouble.  Hey, it’s a tough job but somehow I manage!
  • My own health continues to fluctuate but I’m doing far more now than I  would ever have considered a year ago.  On top of all the above I continue to provide an ICT Consultancy to a number of charities and arrange hosting and other services here and there.

That’ll do for now – I’ll try to add some more later!

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2nd February 2008

Samuel’s Party

Samuel loved his party. Didn’t get many photos sadly, but those I did get are here:
http://picasaweb.google.co.uk/steve.westrop/Birthday02/

Also a video on YouTube… will add link… http://uk.youtube.com/watch?v=bv5SyNGxUV4

posted late afternoon in Samuel Joshua by puzz1ed1 | 3,247 Views |
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1st February 2008

another quick update

Sorry! Anyway, here’s a brief update…

As I mentioned before I’m now doing a fair bit of work with Disabled Parents Network.  I’m taking calls a few hours each week and have also taken over responsibility for the website, forums, etc etc and all the technical problems that come with it.  Have been revamping the forums over the past week as they looked a little tired (and so have I).

The Fibromyalgia Support Group is slowly getting going, and will be great once it’s fully functional – so far there are a number of posters about and a few calls and enquiries trickling in… press release due to go out at end of minth once we’re back from holiday.

Samuel’s growing fast and doing new things all the time. Can’t believe he’s almost 2 – got his birthday party tomorrow, having followed all his instructions as to who to invite and what food to get! Under the thumb? me?  Hmmm,.,..

Laptop problems are solved, have a whizzy new computer, which of course meant buying a new desk too. It makes such a difference to be able to get things done properly again.  I’ve also got some great new bits of software up and running now which I’ll rave about more another day. One of the most helpful though is the one that allows me (with user permission) to see other people’s PCs and take control of them in order to fix problems.  Spent a couple of hours working on a machione in Salisbury yesterday – it’s now virus free, cleaned up and working much better than before, and the email problems were all fixed too.   Hoping my mother-in-law’s not reading this, though, cos I may have to change phone number and email address if she knows!!

Looking forward to a week away for Samuel’s birthday next week and then a weekend in Reading with DPN in March.  Depending on the outcome of my DLA tribunal on Monday there may be more time away soon once some bills are paid!

Gonna try to post again in the next few days – nag me if I don’t!

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7th December 2007

Quick update for those that are nagging :p

Several people are asking for updates… sorry… here’s  a brief summary of life with more to come later hopefully

I’ve been rather busy over the past month which is partly why there’s been no new posts.  My laptop is also on its way out :-(

I’ve been doing a few mystery shopping and field marketing jobs over the past few weeks, some better than others, and one almost resulting in a discrimination case being brought about.  Of course, because of the nature of the work I can’t say too much about it, but some of it has left me very tired and I am having to cut back on what I do.

I’m now working with Disabled Parents’ Network in several capacities, all of which are voluntary.  There are several other roles that they’ve asked me to think about too/instead, but they’re on hold for the time being!  I am, however, part of the Support Services Team – taking phone calls every Friday afternoon and also responding officially to some of the messages posted on the DPN website forum.  I’ve also taken on the new role of local network link for Thurrock, promoting DPN within the area and looking into how local service providers cater for disabled parents.

I’m still considering a local Fibromyalgia Support Group, and discussion continue with FMAUK about this.  I can’t do it all on my own, though, so if anyone else locally feels this is important then I *need* to hear from you!!

Samuel’s growing up at an amazing pace and is ridiculously excited about Christmas.  He insisted on wearing a Santa hat to nursery today,… it’s way too big for him, but he doesn’t care!

Gonna have to leave it there for now and get ready to answer the phones

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25th October 2007

Positively discriminatory

When you hear the phrase ‘disability discrimination’ what do you think? Butlins have managed to challenge my – and probably your – interpretation…
It used to be that disabled guests, and in particular wheelchair users, were let into entertainment venues before everyone else. The main reason for this came down to health and safety: they had to get us in and settled before everyone rushed in without a care for anyone else. Last time we were here they had to keep everyone else out for 40 minutes while getting all the wheelchair users in the broken lift! 
Things are a little different now. There are still 2 queues to get in, but they no longer let the disabled guests queue in first which kinda defeats the object. With the lift the way it is, people who joined the queue half an hour after us are up the stairs and seated before i’m even in the lift! The reasons for the policy change vary depending on who we talk to. Some say it’s because of equal opportunities, others pay it’s because they can’t discriminate. I’m not sure i agree with either but it’s hard to argue when they say that. I’d be interested to hear other’s views…

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21st October 2007

Postcard from butlins

Hey ho, we’re finally settled having had to move three times since we got here! Our disabled-friendly, easy-accessible accommodation was on the first floor. Since they couldn’t provide someone to carry me up and down the stairs in my chair whenever needed they offered to move us to a lovely unit on the far side of the resort, too far out for up to be able to get about! There was talk of a free motorised chair until they realised we were here for the week, so we were moved again! We’re now unpacked, but have lost a room in the process so samuel’s sleeping on the floor: thankfully we’d brought his blow up bed just in case! There’s still no dropped curb to get to the nursery and under 5s play room, our shower leaks, it’s cold, and I forgot to feed the fish before we left! Wish you were here? .

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21st October 2007

Wish you were here?

I’m having a lovely time on my holiday. Daddy said he will try to tell everyone about it on his Blog later today. Hope you are well. Lots of love, samuel x

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23rd September 2007

Putting the TATE in POTATO?

Who knows – could be worth a fortune one day!

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posted mid-afternoon in Samuel Joshua by puzz1ed1 | 3,309 Views |
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2nd September 2007

Summer is Over :(

Well, OK, technically I think it is still Summer, but the School holidays are over at least. Where’s it gone? Seems only a few days ago that Heather came home with loads of presents from the kids and other piles of crap. And now it’s all over, she’s back to work, I’m back to stressing that I can’t cope with doing everything, Samuel’s confused and can’t understand where Mummy’s gone again – even though he waves and shouts goodbye for the entirety of (at least) the last half mile to school.

I had plans to update the blog – both by posting and tidying it up generally – through the Summer, but (as you probably know) that’s not happened. I blame most of it on BT/TalkTalk/Orange/Sky… see the long rant posted a few weeks ago to check the details on that one. The good news now, though, is that we have a working landline phone once more (with a new number – email if you not got it – though still no idea who we should be paying for calls ‘cos BT ain’t charging us for them and don’t know who they are being routed by!), a working broadband connection (not the 16MB advertised, but usually somewhere between 9 and 11MB on a good day… and 3-6 the rest of the time!), a new VOIP phone line for any work-related calls etc, and a rewired network.

Have acquired other new things in the Summer too. We’ve got most of Samuel’s Christmas presents already thanks to Boots clearance sale and a couple of boot sales (must do one ourselves to clear space for the new stuff). I’ve managed to get a new bank account with Co-op to stop Nationwide nicking my benefits, though am still pursuing that with them – they’ve so misread the Social Security Administration Act and are talking utter rubbish… just got to make them see that or get a judge to help them! We’re the proud owners of a 4-man tent and have had our first family camping holiday – almost disaster-free but will be sharing more about that in ‘Diary of a Disabled Dad‘. Oh, and a nice new dent in the car, together with a touch of whiplash. Grrrrr…

Other than the hit-and-run crash, though, the Summer’s been great despite the speed at which it has gone. It was great to spend a few days with my Aunt in Devizes, and to see my Dad and Stepmum while we were camping. Samuel got to see them all too, but I think his highlight was seeing Noddy, Fifi, Rupert, Little Princess, Bob, etc all at once at Butlins. Don’t get me started on Butlins right now though – got to write a strong letter to them, and probably then to the DRC and HSE too. Worst disabled access and safety I’ve ever come across.

The next few weeks are likely to be relatively busy still. I’ve got a string of Mystery Shop assignments at the moment (will post more about that separately), have to get the car sorted, and now that the new Phoenix catalogues are available, with the wonderful Christmas range of cards, wrap, etc it’s time for a mailing, phone calls, and trying to book a few parties. I’ve got another hospital appointment this week, too, which I’m really not looking forward to. If I’m lucky they won’t do anything other than chat and ask a few questions (rarely do very much about anything else IME) though there is a possibility that they may stick a long tube somewhere I’d rather they didn’t.

On that note, I’ll sign off for now and go take some more tablets – they’ve been changed now too, and I’ve hardly slept all Summer :-( I’m planning on getting a few more entries written now, which will appear over the next few days so feel free to drop by often and check, or sign up to get updates. That reminds me – must look into that side of things properly too. If you want to receive notification of new posts and can’t work out how, drop me an email and I’ll hopefully have worked it out by then myself.

Have fun and stay happy, and remember…

blowing out the other person’s candle won’t make yours shine any brighter

posted early evening in General News, wibblings by puzz1ed1 | 3,214 Views |
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