:.Puzz1ed P1ace.:

I know FMS isn’t easy to understand or explain, but sometimes people’s reaction and responses to things are quite amusing in a pain-inducing ironic kind of way.

Take yesterday for example.  We went to Tits ‘n’ Tots at the local church, and the minister happened to be coming out as we were going in.  We had a brief chat about how I was and ‘what was it again that was wrong?’.  She commented on how good it was that I was walking, as the last time she saw me I was in my wheelchair.  I’m all for positive thinking – it’s all that keeps me going some days – so I smiled and said yes.  Really wished afterwards that I’d been a bit more honest, and explained that I was walking because the short walk from the car to the hall is just about managable provided I don’t stand in the car park for five minutes talking whilst holding baby, and that I actually have no choice but to walk since they do not have disabled access (or parking grrrr….) and I can’t life myself and the chair up the steps and over the irritating ledge of the door.

Needless to say, having stood and had our brief conversation I was in great pain and utterly exhausted.  It was a great relief, then, to have a friend offer to look after Samuel for the afternoon.  He had a wonderful time and I had a much needed rest.  Much needed not only because of the exhaustion of the morning and lack of sleep, but because had I not had that rest then I would have probably keeled over whilst standing in their garden for 20 minutes that evening having said thanks and goodbye while waiting for the newly resumed conversation to end.

I think I need to sit in front of my lightbox for an hour or ten before I’m mistaken for Victor Meldrew…

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posted late morning in Diary…Disabled Dad by puzz1ed1 | 2,624 Views |
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